The Perils of Buying Online

A couple of days ago, I wrote Paypal an email about the dispute I had with an eBay seller which I paid an item (a laptop computer) with a total cost of $250 and a shipping cost of $64.13. I am pleased as I can be as I've tried it before out of curiosity if buying online also worked out for me even though considering the Postal System here in the Philippines is really slow.

It took me about a week late to file for a dispute or claim just what it says in their "Legal Agreement" not later than 45 days daw?! I did what I did. It's all my fault for not filing much earlier. And so to make the story short, there are maybe some shortcomings on my part that I didn't consider myself because I was blinded by the kid on me for getting so excited and for a lot of possible reasons I can't remember.

Well, lesson learned: the perils of buying online! How frustrating!

An Open Letter To Paypal: An Update

Dear Naiza,

Hello, I hope all is well with you. My name is Luchicie and it is my
pleasure to assist you. As I understand you would like assistance
regarding case PP-697-634-546 and PP-695-598-685. I sincerely apologize
for the inconvenience this has caused you and I am sorry for the delay
in responding to your email but I would be more than willing to help you
on your concern.

Naiza, our policy is to investigate a claim if it has been filed within
45 calendar days of the initial transaction. Unfortunately, we received
your claim on April 30, 2009 and May 3, 2009 which is after the 45 day
deadline and, therefore, we cannot look into this claim.

We do reserve the right to reopen any claim for investigation within 180
calendar days if we receive multiple complaints about a particular
seller. We will contact you by email if this is the case.

I recommend staying in contact with the seller in order to find a
resolution that you are both happy with.

If you'd like more information please have a look at our User Agreement.
You can find it by clicking on the 'Legal Agreements' link at the bottom
of any PayPal page. You will find specific information on the 45-day
deadline in the PayPal Buyer Protection policy and the PayPal Buyer
Complaint Policy.

We appreciate your concern about the activity on your account. While the
vast majority of online transactions are completed without complication,
fraudulent activity can occur. If you feel you have become a victim of
Internet Fraud, there is help available.

Below are options that can be used outside of PayPal.

1. File an internet complaint report against the other party.
o National Fraud Information Center
o Internet Crime Complaint Center
o Better Business Bureau Online
2. File a police report against the other party.

If you have any further questions, please feel free to contact us again.

Sincerely,
Luchicie
PayPal Resolution Services
PayPal, an eBay Company

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No, it's not viral tweets!

This week I've fallen into a some kind of virus virally - no, I'm not speaking about viral tweets. As I've been hooked on to so many social networking sites here and there these days. Some kind of ordinary influenza strikes the heck out of me. Well, it's not something to be panic about.

Anyway, I'm not all feeling gloomy. I'm actually feeling upbeat that somehow everyday is an answered prayer. I came to a realization that you don't have to rush everything in life when things are not working out your way. The more I thought of holding it back and change the circumstances the way I wanted it to be, I became more and more anxious everyday. So, I decided why can't I let it be, and let it go.

Though letting go sound as hard as it is, it's the only way we can attain the inner happiness and serenity. Every person has that special gift of acceptance it doesn't matter when or how it takes but the most important is that you are able to get up out of that situation and making the most of what you have in life.

Now My Favorite Snack Ever!

I don't know why they called it, "egg curls", a toasted biscuit. Some of you might already tasted it. Very crunchy!

I never intend to Tagged You!

Rules: Once you've been tagged, you are supposed to write a note with 100 Truths about you. At the end, choose 25 people to be tagged. You have to tag the person who tagged you.

WHAT WAS YOUR:
1. last beverage = coffee 3 in 1
2. last phone call = aunt ellen
3. last text message = from ate cheng
4. last song you listened to = Somewhere Only We Know by Keane
5. last time you cried = last night.. I don't know.

HAVE YOU EVER:
6. dated someone twice = nope.
7. been cheated on = never
8. kissed someone & regretted it = never happen.
9. lost someone special = sadly, yes.
10. been depressed = I've always been.. lol
11. been drunk and threw up = yep, once.

LIST THREE FAVORITE COLORS:
12. red
13. blue
14. black

THIS YEAR HAVE YOU: (2009)
15. Made a new friend = yes
16. Fallen out of love = not yet happens.. =]
17. Laughed until you cried = yes
18. Met someone who changed you = yes
19. Found out who your true friends were = yes
20. Found out someone was talking about you = uhm.. I do, malakas intuition ko lol
21. Kissed anyone on your fb friend's list = never happen..

GENERAL:
22. How many people on your fb friends list do you know in real life = a few people
24. Do you have any pets = yah!
25. Do you want to change your name = nope
26. What did you do for your last birthday = natulog ata
27. What time did you wake up today = 7am
28. What were you doing at midnight last night = fallen asleep..
29. Name something you CANNOT wait for = to eat my lunch..
30. Last time you saw your Mother = a few seconds ago
31. What is one thing you wish you could change about your life = many to mention
32. What are you listening to right now = winamp player
33. Have you ever talked to a person named Tom = I think I did out of purpose..
34. What's getting on your nerves right now = uncertainties
35. Most visited webpage = squidoo, yahoo, twitter, my blog, facebook
37. Nicknames = naiz, ate naiz, aiza
38. Relationship Status = just looking around.. lol
39. Zodiac sign = aquarius
40. Male or female? = female
41. Elementary? = ASMI
42. Middle School = RECI
43. High school/College = St. Joseph/ OLFU/ Penn Foster College
44. Hair colour = brown
45. Long or short = shoulder length
46. Height = better not to mention..
47. Do you have a crush on someone? = I don't know.
48: What do you like about yourself = I'm adaptable and can easily relate.
49 Piercings = ears
50. Tattoos = none
51. Righty or lefty = righty

FIRSTS :
52. First surgery = 2002, constructive surgery
53. First piercing = ears
54. First best friend = zarra (childhood friend)
55. First sport you joined = uhm.. wala, haha
56. First vacation = mariveles, bataan din ata
58. Firs - uhm.. lost tong Question ito! = what?

RIGHT NOW:
59. Eating = not eating yet
60. Drinking = hot coffee
61. I'm about to = update on squidoo
62. Listening to = random playlist.. john mayer -back to you
63. Waiting on = the world to change.. nice song by @johncmayer

YOUR FUTURE :
64. Want kids? = idk
65. Get Married? = ??
66. Career? = ghost writer online

WHICH IS BETTER :
67. Lips or eyes? = eyes
68. Hugs or kisses = hugs
69. Shorter or taller = it doesn't matter
70. Older or Younger = older
71. Romantic or spontaneous = spontaneous
72. Nice stomach or nice arms = nice arms
73. Sensitive or loud = sensitive
74. Hook-up or relationship = relationship
75. Trouble maker or hesitant = trouble maker.. you live, you learn!

HAVE YOU EVER :
76. Kissed a stranger = creepy, nope
77. Drank hard liquor = not yet
78. Lost glasses/contacts = nope
79. Sex on first date = uhmm.. NO! haha
80. Broken someone's heart = I did.. not romantically though
81. Had your own heart broken = yep, not in a romantic sense
82. Been arrested = nope
83. Turned someone down = yeah
84. Cried when someone died = of course
85. Fallen for a friend? = never happens

DO YOU BELIEVE IN:
86. Yourself = of course
87. Miracles = yep, miracles happens within you
88. Love at first sight = nope
89. Heaven = yeah
90. Santa Claus = no
91. Kiss on the first date = nope
92. Angels = yes

ANSWER TRUTHFULLY:
93. Had more than one bf/gf? = oh gosh.. never happen
95. Did you sing today? = a couple of songs lol
96. Ever cheated on somebody? = hindi ah
97. If you could go back in time, how far would you go, and why? = not necessary
98. If you could pick a day from last year and relive it, what would it be? = when I earned my first squidoo payday lol
99. Are you afraid of falling in love? = nope
100. Posting this as 100 truths? = of course, I can attest to that.

still trying to untangled up

Time to brush off these empty page. I totally miss my "work" here online for quite some time I found myself in a series of unfortunate events that drastically change my everyday routine.

Anyway, how I'm blessed to be here and definitely tomorrow is another day.

Summer is ending soon. Aw, how many times I have to say that. It's not even summer. Weather change. Feels like I'm always on the run for things, for people and for nonsense. Sometimes, keeping up with the madness can be so tiring at times. I'm tired of arguments and I'm tired of arguing back.

Sometimes, the best way to win all the battles is just to sit in the corner and formulate new ideas as your defenses. But most of the time, I'm not the type who would just back down and shut down everything. I maybe small or naive at times but that doesn't mean I would just tolerate and let them step on me.

Yes, I'm still trying to untangled up this week. I will be back soon.. There's more to write and more battles to overcome. Oh gosh!

unfinished

Two windows closed,
Curtain see through the darkness of the night
As I lay down for awhile
Silence beckoning into my ears
Piercing sound like thin needles tossed in the air...

I'm an Idiopath, so what?

Now the right time has come. Today is definitely "Blogging against Disablism Day 2009"!

Oh yeah, I haven't forgotten it even though we were obviously living in a different time zones. I live somewhere here in the tropical sun-kissed city of Manila and there you are!

As I am planning to make a draft of it the day before, I don't know why it doesn't materialize. Maybe because I’m always been preoccupied by the happenings of the day, the noisy chattering inside the house, and my unpredictable health issues I’m experiencing from time to time.

It’s like going through a certain routine which I have no choice but I had to do it all over again.

In my recollection, twenty three years has past already. Counting down the days and the age doesn’t matter at times on how it all began. Sometimes, living with a disability can make your world stop to a certain pace in your life which you really don’t know how to pick up the pieces together and move on to a much better life you deserve in the first place.

Anyway, look at us. We manage to get up and make the most out from our own circumstances and situation with the help of our own families and with the community who embraces us and more often not.

The one I had is a rare genetic bone disorder called “Idiopathic Carpo-tarsal Osteolysis” or also known as “Idiopathic Multicentric Osteolysis”.

I was born like a normal child and as far as I can remember everything is normal. MD said it’s somewhat congenital which is while I’m still developing in my mother’s womb I already had these physical disorders and genetic defect that affected my physical development as I reached my puberty age and early adolescence. The word “idiopathic” explain it as a disease/disorder arising spontaneously or from an obscure or unknown cause.

Maybe its part of a genetic makeup caused some serious functional disabilities later on in my growing years up to my present condition. I’m always been aware that I’m not going to be mobile like an average abled-person does. Later on, it made me accept some of the things I can do and I cannot do.

August 2002. Fitting some hospital dress, before my first operation

Somewhere in September 2002. With Dr. Saguin removing the cast on my both knees.

Early April 2003. Closer look at the my operated knees while removing the cast.


June 2008. Preparing for my 3rd operation operation removing steel pins on the right knee. Sorry low quality photo.

June 2008.

Right after graduating from high school in 2004 and learning the use of the internet, I started looking out, researching some medical stuff in the internet anything that causes my tick and answers to those questions continue to unravel.

and this is what I had found out after all these years...

“Osteolysis(from the word “osteo” meaning “bones”) refers to an active resorption or dissolution of bone tissue as a part of an ongoing disease process.” – Wikipedia

“Idiopathic Multicentric Osteolysis” is a rare bone disorder. It is characterized by an extensive osteolysis, usually at the carpal and tarsal areas but other bones may not be involved.

-(You can read more here– SpringerLink –Journal Article)

“Idiopathic Multicentric Osteolysis” (IMO) is a rare disorder leading to extensive bone loss, most frequently in the carpal and tarsal areas. It is distinguished from Gorham’s massive osteolysis in the latter is unicentric and pathologically is associated with hemangiomatosis.

Table I. — Classification of idiopathic osteolysis according to Hardegger et al (15)

1. Hereditary multicentric osteolysis with dominant transmission
Between the ages of two and seven years, spontaneous pain and swelling begin in the hands and feet. Carpo-tarsal osteolysis occurs over the period of a few years.
Progression ceases normally in adolescence

2. Hereditary multicentric osteolysiswith recessive transmission
Similar to Type 1, but may be associated with severe generalised osteoporosis.

3. Non-hereditary multicentric osteolysis with nephropathy
Appears in childhood.
There is a gradual disappearance of the carpus with the tarsal
bones involved but to a less degree, and an association with proteinuria. Death occurs
usually due to renal failure and malignant hypertension.

4. Gorham’s massive osteolysis (Gorham-Stout syndrome)
Monocentric occurrence in any part of the skeleton may start at any age.
Normally “hemangiomatous” tissue is found in the osteolytic region. It has neither a hereditary pattern nor an associated nephropathy. The disease is benign and the osteolysis usually stops after a few years.

5. Winchester syndrome Autosomal recessive transmission.
Rare childhood carpo-tarsal osteolysis in association
with contractures, shortness of stature, skin lesions, corneal clouding and osteoporosis without nephropathy.

-(You can read more here– Idiopathic Multicentric Osteolysis: A case report and review of literature)